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Including best practices and the voices of experience in developing post-diagnostic dementia support guidelines for people with an intellectual disability

To develop accessible best practice guidelines for post-diagnostic dementia supports for people with an intellectual disability in Ireland. The project aims to:

(1) examine the current landscape of post-diagnostic care at a national level;

(2) consider barriers to access;

(3) incorporate existing best practices; and

(4) give due consideration of the experiences and recommendations of people with an intellectual disability living with dementia and of their families/carers.

A Systematic Review of the Public’s Knowledge and Understanding of Alzheimer’s Disease and Dementia.

Project Aim(s): This paper reports findings from a systematic review of the literature on the general public’s knowledge and understanding of dementia/Alzheimer’s disease. The key purpose of the review was to evaluate existing literature with specific attention paid to conceptual and methodological issues and to key findings. Over a 20-year period, 40 published articles satisfied the inclusion criteria. Only 4 of these were qualitative and 5 were cross-national.

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