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Advance Care Planning in Older Persons Mental Health / Dementia

This doctoral study seeks to gain a holistic understanding of the Mental Health Service for Older Person’s advance care planning practice nationwide, and to identify ways of augmenting and improving decision-making practice with older persons living with dementia or with mental health challenges considering the newly commenced ADM legislation. To achieve this aim, a three-stage action research study, using a combination of quantitative, qualitative, and co-operative inquiry approaches is utilised. 

TUDA study

The Trinity-Ulster-Department-of-Agriculture (TUDA) cohort is a unique and innovative resource for ageing research designed to assess the impact of nutritional, lifestyle, environmental and genetic factors on diseases of ageing, particularly in the prevention of cardiovascular disease, dementia and osteoporosis.

TUDA Study

The Trinity-Ulster-Department-of-Agriculture (TUDA) cohort is a unique and innovative resource for ageing research designed to assess the impact of nutritional, lifestyle, environmental and genetic factors on diseases of ageing, particularly in the prevention of cardiovascular disease, dementia and osteoporosis.

The Eye in Down syndrome as a window to Alzheimer’s Disease

Early, non-invasive, inexpensive biomarkers of Alzheimer’s Disease (AD) are much needed. Those with Down syndrome (DS) are the largest patient group at increased risk of AD. Evidence suggests that imaging the eye could be a non-invasive biomarker to screen for AD. However, there is limited information regarding ocular changes in DS. Our group was the first to image the lens in DS, revealing the presence of small ‘dot’ opacities in the lens in 54% of individuals with DS.

Some Dance to Remember

To investigate the psychosocial effects of the introduction of an adaptive Irish Céilí dance group activity with people living with dementia and their carers.

Including best practices and the voices of experience in developing post-diagnostic dementia support guidelines for people with an intellectual disability

To develop accessible best practice guidelines for post-diagnostic dementia supports for people with an intellectual disability in Ireland. The project aims to:

(1) examine the current landscape of post-diagnostic care at a national level;

(2) consider barriers to access;

(3) incorporate existing best practices; and

(4) give due consideration of the experiences and recommendations of people with an intellectual disability living with dementia and of their families/carers.

Valuing Psychosocial Care in Dementia

This research project focuses on how person-centred, non-pharmacological approaches to care are valued in dementia and a contingent valuation approach will be used to examine preferences and values from citizens with respect to alternative types of care. The research also involves creating a taxonomy of psychosocial supports in dementia care in Ireland, including the evaluation of a number of psychosocial interventions including Alzheimer Cafés.

Economics of Informal Care for People with Dementia

This research programme focuses on the economic, social, health and emotional costs of caring for people with dementia. The research will provide longitudinal estimates of the relationships between informal care costs and cognitive function, comorbidities and behavioural changes in people with dementia, including an exploration of the potential of psychosocial interventions and technology-based interventions for care-givers to ameliorate the potential burden of care.

An Exploration of Personhood in Dementia in Formal Care in Ireland

This project examined personhood in dementia within formal care provision and relationships in Ireland. The concept of personhood within the context of formal care was examined through three different lenses: formal care policy, formal care settings and formal care relationships. Each lens provides different insights and perspectives into personhood in dementia and at both the macro and micro level of formal care provision. The central research question was: How is personhood in dementia conceptualised, expressed, facilitated and actualised in formal care in Ireland?

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