Skip to main content

Profiling Communication Ability in Dementia (P-CAD)

Individuals with dementia have communication limitations resulting from cognitive impairments that define the syndrome. Whereas there are numerous cognitive assessments for individuals with dementia, there are far fewer communication assessments. The Profiling Communication Ability in Dementia (P-CAD) was developed to address this gap. The purpose of the study was to answer the following research questions: 1) What is the validity and reliability of the P-CAD? 2) Is it sensitive to change over time in the cognitive communication ability of the person with dementia?

The Keepsake Chronicles

Story telling is a way to define, make meaning and construct the self and we are three story tellers who believe that this is as important for people with dementia as it is for any of us.  Despite this we know that social isolation is both a risk factor and a symptom of worsening dementia.  We wanted to explore if people with dementia would enjoy a story telling group and to record those stories in a beautiful way that they could keep for the uncertainties in the future.  We asked people to bring an object that has been in their poss

Co-DESIGN for Dementia: A Holistic Digital Platform for Integrated Dementia Self-management Support

This project aims to co-design and co-create a holistic digital health and well-being platform with and for people with dementia to provide enhanced dementia self-management support. The platform will integrate a visual personalised care plan for people living with dementia, provide timely access to services and supports when required, tailored to the specific needs of a person living with dementia and their carers, to support them to live independently in their own homes. 

 

Smart Self-Care for Dementia

Persons with dementia should be at the centre of decision-making about their care including basic activities (e.g. feeding and dressing), advanced activities (e.g. finances and using transportation), and meaningful activities (e.g. social and recreational pastimes). However, there is limited involvement of people with dementia in design of technology to support their care.

In-Touch

Challenge. Caring for the increasing numbers of people across Europe with advanced dementia and palliative care needs who live in care homes is difficult and demanding. People with advanced dementia can be immobile, non-verbal and unable to take part in day-to-day activities. They can be unsettled or agitated, with low quality-of-life and elevated levels of discomfort. Family members can find it difficult to connect meaningfully with their relative and are anxious about the future.

Is Ireland prepared for the new disease-modifying therapies (DMT) for Alzheimer’s? Scoping perspectives and attitudes of lay stakeholders

No new Alzheimer's drug treatment had be licensed for 20 years until 2021, when the first Alzheimer's disease-modifying therapy (DMT) was licensed in the USA, giving hope of slowing/reversing the disease. Several new DMTs are expected. Unfortunately, offering DMTs in Ireland requires significant changes in Memory Clinic set-up, due to high drug costs and need for careful monitoring. Moreover, DMTs only work in people in early Alzheimer's, which is often unrecognized in Ireland.

©2025 Dementia Research Network Ireland. Follow us on Twitter: @DRNIre