Trinity College Dublin
We are conducting a survey and in-depth interviews to find out what are the support/service needs of people living with different types of dementia and their care partners, i.e. what services they have or would like access to/what resources would help to improve their quality of life.
Aim: To set priorities for research to inform health and social care planning for people with LBD and their care partners in Ireland.
Specifically, this project will:
Objective 1: Identify the evidence gap and priority needs for LBD by incorporating multiple stakeholder perspectives, with strong 'patient and public involvement (PPI)', based on gold standard JLA methods.
No new Alzheimer's drug treatment had be licensed for 20 years until 2021, when the first Alzheimer's disease-modifying therapy (DMT) was licensed in the USA, giving hope of slowing/reversing the disease. Several new DMTs are expected. Unfortunately, offering DMTs in Ireland requires significant changes in Memory Clinic set-up, due to high drug costs and need for careful monitoring. Moreover, DMTs only work in people in early Alzheimer's, which is often unrecognized in Ireland.
Lewy body dementias (LBD, including Parkinson's dementia and Lewy body dementia) accounts for >20% of the nearly 65,000 people with dementia in Ireland. LBD is ‘the most common form of dementia no-one has heard about’. Fewer than 5% of those affected receive a formal diagnosis. LBD is characterised by cognitive-behavioural and physical changes which significantly impact quality of life and care burden. Knowledge, awareness and support in Ireland for LBD is minimal.
The Trinity-Ulster-Department-of-Agriculture (TUDA) cohort is a unique and innovative resource for ageing research designed to assess the impact of nutritional, lifestyle, environmental and genetic factors on diseases of ageing, particularly in the prevention of cardiovascular disease, dementia and osteoporosis.
The Trinity-Ulster-Department-of-Agriculture (TUDA) cohort is a unique and innovative resource for ageing research designed to assess the impact of nutritional, lifestyle, environmental and genetic factors on diseases of ageing, particularly in the prevention of cardiovascular disease, dementia and osteoporosis.
Project Aim(s): This study on dementia and home design in Ireland was undertaken to inform the development of Universal Design Guidelines for Dementia Friendly Dwellings produced by the Centre for Excellence in Universal Design at the National Disability Authority in 2015. The study included an extensive scoping review of the literature, stakeholder engagement, and case studies of dwellings designed for people with dementia.
Project Aim(s): This national survey investigates the location, resourcing, staff composition, treatments, waiting time, and numbers of patients attending memory clinics (MCs) in the Republic of Ireland. It also explores Directors’ attitudes to future service development including their views about the advantages and disadvantages of quality standards for MCs.
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