Caring for a loved one with Alzheimer's disease or another type of dementia can be a very positive and rewarding experience, but it can also leave the carer feeling stressed and isolated. This module is designed to advise carers how the stressful aspects of caring can be minimised and the positive experiences maximised by looking after their social and emotional needs and by managing how they respond to challenging behaviours.
Research
DRNI Members Research is a list of ongoing and completed research carried out by DRNI members.
You can search via project type, disease, or Principal Investigator/Researcher name.
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Eating, drinking and swallowing (EDS) difficulty is common in dementia and earlier identification could reduce morbidity, mortality, healthcare costs and improve quality of care. A proactive and condition-specific strategy for identifying EDS difficulty at an early stage for people living with dementia has yet to be developed. Before this can be achieved, holistic person-centred early indicators of EDS difficulty in early-stage dementia are needed and more understanding of barriers to early identification is required.
IN-MIND is a four country FP7 European funded project which seeks to develop and validate online tools to help doctors assess if an individual’s lifestyle supports long term brain health. The project also generate personal strategies for adopting a brain healthy lifestyle and provide on-line supports to help people in midlife implement and adhere to positive change.
IDS-TILDA is a longitudinal study researching ageing in Ireland among people with an intellectual disability aged 40 and over (n=approximately 750 people). Individuals with an intellectual disability, particularly those with Down Syndrome are at an increased risk of developing an Alzheimer’s related dementia. The IDS-TILDA collects information on Intellectual Disability and Dementia.
IDS-TILDA is a longitudinal study researching ageing in Ireland among people with an intellectual disability aged 40 and over (n=approximately 750 people). Individuals with an intellectual disability, particularly those with Down Syndrome are at an increased risk of developing an Alzheimer’s related dementia. The IDS-TILDA collects information on Intellectual Disability and Dementia.
In 2013, the Irish National Audit of Dementia audited 35 acute hospitals in the Republic of Ireland, interviewing the senior hospital managers and geriatricians; directly observing the environment/ interviewing the clinical nurse manager of 77 wards, and reviewing 660 healthcare records of people with dementia who had been admitted to the hospitals.
As part of the BIOMARKPD initiative the Irish Network for Biomarkers in Neurodegeneration (IN-BIND) was established. It is a research infrastructure aimed at creating a functional network for clinical and laboratory based scientists working in this area. Similar to BIOMARKPD, the aims of IN-BIND are the standardisation of biomarker measurement across Ireland and Europe to include i) sample collection, ii) measurement, iii) and interpretation.
As part of the BIOMARKPD initiative the Irish Network for Biomarkers in Neurodegeneration (IN-BIND) was established. It is a research infrastructure aimed at creating a functional network for clinical and laboratory based scientists working in this area. Similar to BIOMARKPD, the aims of IN-BIND are the standardisation of biomarker measurement across Ireland and Europe to include i) sample collection, ii) measurement, iii) and interpretation.
Adopting a three pronged multidisciplinary research approach the programme is organised in three specific and interlinked work packages relating to Amyotrophic Lateral Scerosis, spanning clinical, epidemiological and health services research including health economics. The research aims to generate a framework for optimal management of ALS and explore its relevance for other neurological conditions.
Adopting a three pronged multidisciplinary research approach the programme is organised in three specific and interlinked work packages relating to Amyotrophic Lateral Scerosis, spanning clinical, epidemiological and health services research including health economics. The research aims to generate a framework for optimal management of ALS and explore its relevance for other neurological conditions.