Project Aim(s): This project aimed to utilize data from the Irish Register and the national ALS service to generate a framework for care for Irish ALS patients based on their clinical phenotype, rate of progression and long term prognosis. The objective was to design, estimate the costs, and measure the benefits of a multifaceted care programme that incorporates the key clinical and prognostic elements of ALS.
Disease area
Motor Neurone Disease
Field of research
Clinical Research
Principal Investigator/ Researcher Names
Prof. Orla Hardiman
Prof. Anthony Staines
Prof. Charles Normand
Prof. Virpi Timonen
Dr. Regina McQuillan
Institution
Beaumont Hospital Dublin
Dublin City University (DCU)
Trinity College Dublin
Funding body
HRB
Grant Awarded (€)
625,000
Start date
Project completed
Yes
End/expected end date
Are you looking to Recruit Research Participants?
No