Young onset dementia (YOD) varies in many respects to typical aged dementia. The person with YOD will live with an increasing number of cognitive, neurological, psychological, emotional, economic and social changes. There are about 4,000 people with YOD in Ireland. A recent Irish report on YOD (Fox, Cahill, McGowan, & Kilty, 2020) emphasised the urgent need for improved health services and community supports to provide comprehensive and individualised care for Irish people living with YOD.

The proposed project will further this research and translate it into practice, through further focussed research and dialogue with people with YOD and other key stakeholders, culminating in a practical guidance document.