Mapping Parkinson’s Disease Needs and Services in Ireland to inform Service Planning.

Project Aim(s): To support national and local Parkinson’s disease service planning by three linked work packages.

The first maps the prevalence of Parkinson’s disease and service availability for people with Parkinson’s, across each of the nine Community Healthcare Organisation regions in Ireland, to highlight mismatches between population needs and service provision.

The second develops quality indicators for Irish PD services and assesses existing services against these indicators, to demonstrate where extra resources are needed to provide a quality service.

The final work package explores the experience of people with Parkinson’s with respect to services they receive, and their priorities for service provision.

Principal Investigator/ Researcher Names

Dr. Suzanne Timmons (PI)
Dr. Emma O' Shea (Postdoctoral Researcher)
Ms. Alphie Rukundo (Research Assistant)

Disease Area

Parkinson's Disease and related disorders

Field of Research

Connected Health

Institution

University College Cork (UCC)

Funding body

Health Research Board

Grant Awarded (€)

Patrick Quinn Award, PQA-2019-002

Start date

November 2019

End/expected end date

November 2021

Date of Expected Results/Outcomes

November 2021

Project Completed

No

Are you looking to Recruit Research Participants?

Yes

Research participants information

If you are a person with Parkinson’s disease, a carer, a clinician, or other stakeholder involved in the care of people with Parkinson’s, please contact the project manager, Emma O’ Shea (emma.oshea@ucc.ie; 0857889499), to find out more about how you can get involved in this programme of  research.

Additional Comments

We will be conducting surveys and interviews with people with Parkinson’s disease and their carers about their own personal experiences of health services for Parkinson’s disease in Ireland. We are also looking for people with Parkinson’s disease and carers to be involved in the Patient and Public Involvement (PPI) advisory group for this project – we would really value your input on details of the project to ensure that we are addressing the issues that are most important to people with Parkinson’s and their carers in terms of health service provision and development. We will be conducting surveys and interviews with other professional stakeholders regarding current health service provision for people with Parkinson’s in Ireland, with particular reference to specialist Parkinson’s (movement disorder) clinics, and generic clinics that see people with Parkinson’s.