Including best practices and the voices of experience in developing post-diagnostic dementia support guidelines for people with an intellectual disability

To develop accessible best practice guidelines for post-diagnostic dementia supports for people with an intellectual disability in Ireland. The project aims to:

(1) examine the current landscape of post-diagnostic care at a national level;

(2) consider barriers to access;

(3) incorporate existing best practices; and

(4) give due consideration of the experiences and recommendations of people with an intellectual disability living with dementia and of their families/carers.

Principal Investigator/ Researcher Names

Professor Mary McCarron
Dr Eimear McGlinchey
Professor Seán Kennelly
Ms Pamela Dunne
Dr Louise Daly
Dr Andrew P. Allen
Ms Holly Dennehy
Ms Christina Corr
Professor Philip McCallion

Disease Area

Dementia (including Alzheimer's Disease and other dementias)

Field of Research

Clinical Research


Tallaght University Hospital
Trinity College Dublin (TCD)

Funding body

Health Research Board & Alzheimer Society of Ireland, under Health Research Charities of Ireland/Health Research Board Joint Funding Scheme.

Start date

June 2021

End/expected end date

December 2022

Date of Expected Results/Outcomes


Project Completed


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