Including best practices and the voices of experience in developing post-diagnostic dementia support guidelines for people with an intellectual disability
To develop accessible best practice guidelines for post-diagnostic dementia supports for people with an intellectual disability in Ireland. The project aims to:
(1) examine the current landscape of post-diagnostic care at a national level;
(2) consider barriers to access;
(3) incorporate existing best practices; and
(4) give due consideration of the experiences and recommendations of people with an intellectual disability living with dementia and of their families/carers.
Principal Investigator/ Researcher Names
Professor Mary McCarron
Dr Eimear McGlinchey
Professor Seán Kennelly
Ms Pamela Dunne
Dr Louise Daly
Dr Andrew P. Allen
Ms Holly Dennehy
Ms Christina Corr
Professor Philip McCallion
Disease Area
Dementia (including Alzheimer's Disease and other dementias)
Field of Research
Clinical Research
Institution
Tallaght University Hospital
Trinity College Dublin (TCD)
Funding body
Health Research Board & Alzheimer Society of Ireland, under Health Research Charities of Ireland/Health Research Board Joint Funding Scheme.
Start date
June 2021
End/expected end date
December 2022
Date of Expected Results/Outcomes
Ongoing
Project Completed
No
Are you looking to Recruit Research Participants?
No
